Arrhythmia Alliance (A-A) and sister charity, Syncope Trust And Reflex Anoxic Seizures (STARS), The Blackouts Trust, are launching their first global patient surveys to gather information on the patient experience of symptoms, diagnosis, treatment and management of heart rhythm disorders and syncopal conditions.
The results from the surveys will be used to help inform, educate and raise awareness of heart rhythm disorders and syncope globally.
Trudie Lobban, founder and trustee of Arrhythmia Alliance, said, “Standards of care for syncope and arrhythmias are slowly improving but it is time we took a close look at the patients’ experience of their diagnosis and treatment.The responses gathered from the patient surveys will provide valuable evidence to create a current picture of arrhythmia and syncope services in the UK and abroad. I would like to encourage as many patients and carers affected by heart rhythm disorders and syncope to take part in the surveys.”
The surveys are available online through the charity websites: www.heartrhythmcharity.org.uk and www.stars.org.uk